Sleep and travel

It is important to consider how sleep and travel can have an impact on daily routines

 

Sleep

Sleep is essential for general health and well-being, but many cystic fibrosis (CF) patients experience poor or disturbed sleep. There are many things that might affect sleep quality in people with CF including coughing, certain medications and the increased work of breathing.1

Sleep disruption and nocturnal hypoxia (reduced oxygen supply) are common in people with CF, and in some cases, oxygen therapy might be required.2 If you are having difficulty sleeping or notice a change in your sleeping habits, please speak to your doctor for advice.

 

Sleepovers and sleeping in

If you are going on a sleepover, remember to take enough medicine with you for the time you will be away from home. If you plan to have a lie in on weekends or holidays plan the time you will take your treatment so that you do not miss a dose.

 

Travel

Whenever you are going to be away from home make sure that you plan ahead so that you have all the medication you will need.

Before longer holidays, and especially if you will be travelling abroad, it is a good idea to agree your treatment plans with your doctor.

If you know that you are travelling away from home:

  • Take an extra few days’ worth of medication and other supplies, for example an extra few tablets or nebuliser masks.

  • Think about storing extra tablets separately just in case you misplace or lose one lot of tablets.

  • Have access to convenient, fat-containing snacks when you are travelling. This can still be a healthy snack such as a small handful of nuts or seeds.

  • Keep others informed and have your doctor or nurse’s contact details to hand in case you need to ask their advice.

 

Travelling abroad

Living with CF doesn’t have to stop you travelling abroad, it just requires some planning.

Remember to talk to your doctor or nurse about any trips you are considering. They will be able to discuss the healthcare facilities available in your intended destination, and any country specific considerations.

 

Preparing your documents

Before travelling, make sure you have all the documents you need for travelling with medicines and accessing medical care at your destination.

These may include:3

  • A detailed medical report and vaccination history (in English).

  • A customs certificate to show you are permitted to travel with medicines, needles and an oxygen tank (depending on your needs). A letter from your doctor explaining which medicines are required and approximate quantities may also be useful.

  • Details of your insurance policy including an emergency contact.

  • Contact details for your CF care team at home.

  • Contact details for a CF clinic or well-equipped hospital at your destination.

  • Contact details for a local patient association (if there is one).

 

Whilst travelling

There are wide range of factors to consider while travelling abroad, from infection risks when traveling by aeroplane, to the requirements for safe medicine transport, changes in climate and the extent of local CF care facilities.3 These should all be discussed with your CF care team prior to departure.

If you are travelling by aeroplane it is a good idea to make your airline aware of your requirements well in advance of the travel date, ideally at time of booking and again a few days before departure. The airline should provide the support you need to board the plane safely and keep you comfortable throughout the flight. If you are travelling with oxygen you may need to make specific arrangements for this.3

If you are travelling with medications these should ideally be carried as hand luggage. If this isn’t possible a one week supply should be kept with you, just in case a suitcase goes missing.3

References

1. Jankelowitz L, Reid K, Wolfe L et al. Cystic Fibrosis Patients Have Poor Sleep Quality Despite Normal Sleep Latency and Efficiency. Chest. 2005;127(5):1593-1599.

2. De Castro-Silva C, De Bruin VMS, Cavalcante AGM, et al. Nocturnal Hypoxia and Sleep Disturbances in Cystic Fibrosis. Pediatric Pulmonology. 2009;44:1143-1150.

3. Hirche T, et al. Travelling with cystic fibrosis: Recommendations for patients and care team members. J Cyst Fibros. 2010;9:385-399.

 
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